This child suffering from a rare disease, they are collecting donations to help her in Orne

This child suffering from a rare disease, they are collecting donations to help her in Orne
This child suffering from a rare disease, they are collecting donations to help her in Orne

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Olympic Games writing

Published on

Jan 1, 2025 at 5:06 p.m.

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The concert recently given in December 2024 in the church of Trun (Orne) was dedicated to Capucine, suffering from the syndrome of

Pallister-Killian. An action permitted thanks to the meeting Nathalie and André Debèvethe artists, with Capucine's dad, Julien Carrié, during their show “Ah Dieu que la guerre est belle”, at the “le Drakkar” performance hall, in Seine-Maritime.

Significant psychomotor delay

Julien Carrié is a sound engineer there. He told them about his daughter Capucine and her illness Pallister-Killian syndrome, a rare genetic disease affecting approximately one in 10,000 children.

Capucine suffers from significant psychomotor delay, does not walk, does not speak and also suffers from a malformation of the spinal cord.

So, in the spirit of Christmas, Nathalie and André decided to give a little help to the association who comes to the aid of Capucine's family, offering the quest of the vigilor €460.

People wishing to help Capucine can make a donation on the Méli-Mélo61 HELLO ASSO website/make a donation for Capucine.

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