The anecdote can make you smile. If we try to contact the departmental coordinator of the French Association against Myopathies (AFM)-Téléthon in the Territoire de Belfort, the official website of the structure will mention a certain… Patrick Bruel in this position. A mention accompanied by an email address ([email protected]) of correct appearance. Appearance only.
As has been the case for more than a year, the AFM-Téléthon regional branch no longer has a coordinator. And it relies even less on Patrick Bruel, the famous singer or a namesake, to carry out this function. A reality confirmed by a volunteer from the association and a network manager, based at the headquarters in the Paris region, from where everything is still managed this year for territorial coordination.
The anecdote can actually make you smile. But it should not make us forget that the Telethon will experience the highlight of its 38th edition this Friday November 29 and Saturday November 30. To help finance research projects around neuromuscular genetic diseases but also other rare genetic diseases. And that is a reality.
