It’s been two years since Celine Dion faces the stiff man syndrome. An illness which would have started in 2008, during the singer’s world tour, Taking Chances. In the interview granted by the 56-year-old singer to French Vogue, this Thursday, May 23, she claims that she knew directly that something was wrong with her voice. “I had hard to control“, she explains. “I went to see an ENT“, she emphasizes, but nothing was detected at the time.
The Covid pandemic was the trigger that pushed the singer to take a serious look at her health problems. This is how she paused. “I held out as long as possible. I had to stop being brave. I had to take charge of myself“, she confided to Vogue. Various medical examinations made it possible to discover stiff person syndrome, this rare neurological disease at the origin of its muscle spasms and stiffness. “It might sound weird to say that, but I was happy when I was told. I would finally be able to living with this disease and no longer endure it“, she remembers.
Celine Dion: a documentary on her fight!
In the trailer for the documentary film titled I Am: Celine Dion, the singer confides deeply about her illness. Note that this work by the documentary filmmaker Irene Taylorwill be available from June 25 on Amazon Prime Video. In this trailer, the star looks back on his fight against the disease for two years now. “It’s not difficult to put on a show. It is harder to cancel a concert“, she begins with strong emotion.
In images where we can see her taking her medication, Céline Dion explains in tears: “I work hard every day. But I have to admit, it’s a real struggle. I miss it so much. I miss the public. When I can’t run, I walk. And when I can’t walk, I crawl“Despite the scale of the battle, she underlines the fact that she will not give up.”I can’t stop and I won’t stop“, she emphasizes.
I am: Celine Dion… the love letter to her fans!
HAS VogueCéline Dion confides that she had approached several directors from 2022. Ultimately, her choice fell on Irene Taylor for this work which is I am: Celine Dion. “I wanted to be able to work with someone in perfect harmony, vibrate in unison. I didn’t want someone who would dramatize my life or reinvent what I was going through.“, explained the singer, continuing with: “I met Irene and immediately felt that she was the one for me“.
For her part, the documentary maker admits to having been fascinated by all the hidden facets by Celine Dion. Irene Taylor nevertheless affirms that the documentary was made to portray the Celine Dion of today. “The film is intended to show Celine Dion as it is now : in the light of a career of over 40 years“, specifies the Oscar-nominated producer. “I didn’t make a film for his fans, but the documentary is undoubtedly a love letter to them. Her fans are very worried about Céline at the moment. They want to know where she is, but also continue to listen to her and let themselves be touched by her music. I think – I hope – that the film encompasses both of these aspects“, underlines Irene Taylor.
