Romain Gayraud, a young resident of Grabels, concerned by Marfan syndrome, decided to take up a challenge with four of his friends. Together, they chose to organize a charity volleyball tournament Sunday April 27whose entire profits will be donated to the Marfans association. This event will take place in Vailhauquès from 9 a.m. Romain, from Grabels, explains what Marfan syndrome is: “Marfan syndrome is a rare, potentially fatal genetic disease that affects connective tissue, it mainly affects the eyes, bones, joints, lungs, but the main problem remains the aorta with risk of aortic dissection. Today, 15,000 people are reached in France, and there is no treatment to heal. Friends, we immediately thought of linking the causes. “
Several matches and activities during the day
In total, eight volleyball teams, made up of 4 to 6 players, will participate in this tournament. THE Registration for players are open From now on, and you can find all the necessary information on the Instagram page Fluley for Marfans. It is important to note that each participant will have the opportunity to play as much as possible since, even in the event of a defeat, each team will play several games to take full advantage of the event.
In addition, a raffle will be organized with many prizes to be won, and a refreshment bar will be available on the day of the tournament.
Midi Libre correspondent: 06 72 85 20 41
