The Ministry of Health and Social Protection celebrated Thursday, like the international community, the World Hemophilia dayplaced this year under the theme “Access for all: women and girls are also bleeding”, as he was retained by the World Hemophilia Federation (FMH).
On this occasion, the ministry organizes a national awareness campaign, in addition to a scientific conference bringing together the stakeholders and the actors concerned in the field of coagulation disorders. This campaign is part of a continuous dynamic aimed at strengthening early diagnosis, expanding fair access to care and promoting global and inclusive management, in particular for women and girls who suffer from a lack of attention to their health needs linked to these often overlooked disorders, said a ministry’s press release.
In addition, the celebration of this day is an opportunity to reaffirm the importance of collective action in controlling this disease, in order to overcome the challenges faced by people with hemophilia and their families, adds the same source. This day also aims to make public opinion aware of hemophilia and other coagulation disorders, which are rare hereditary conditions, altering the ability of blood to coagulate normally. According to the World Hemophilia Federation, nearly 1,253,000 people live with hemophilia worldwide, only 30% of which are actually diagnosed and supported. The most frequent form is hemophilia A, representing 4 to 5 times more cases than hemophilia B.
In Morocco, the number of people affected is estimated at around 3,000, of which only 1,100 patients are diagnosed and followed, according to the ministry, specifying that in the face of the stake represented by hemophilia as a public health problem, a national prevention and control program was launched in 2010. This program aims to improve the care of affected persons, allowing to carry out notable advances, including the creation of 17 specialized centers, Reference, at the level of university hospital centers, and 11 are local centers at regional and provincial hospitals.
Strengthening the skills of health professionals through adapted training and improving access to medicines anti-hemophilicessential to reduce complications and improve the quality of life of patients, are all achievements contributing to improving the quality of life of patients. However, despite these achievements, efforts must be made, in particular for other coagulation disorders such as Von Willebrand’s disease, rare factors deficits and hereditary platelet disorders, which remain unknown and sub-diagnosed, especially in women and girls, concludes the press release.
