Affected by Charcot’s disease, journalist Charles Biétry, an eminent figure in the sport and the French media, delivered a poignant testimony in the program seven to eight, this Sunday on TF1, on the occasion of the release of his Memoirs, “The last wave”, published by Flammarion. If he no longer has the use of speech today and his illness earns a little more ground every day, Charles Bietry has lost her smile, his desire to live, but also his anger, that ‘He directs against French policies.
He hopes “a start [des] French governors on the subject of the end of life, failing which he will “commit suicide in Switzerland”. “I want deputies and senators – not all – who did not do the job” and have “forgotten the French,” he said, referring to the bill on end of life, abandoned to Nine days of its adoption due to the dissolution of the National Assembly, and the exam of which has been late. “I am waiting for a start from our rulers, let them vote for this law unanimously,” said Charles Biétry, 81. This law would give “serenity in freedom”, he judges.
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-Prime Minister François Bayrou said that he wanted this bill to be dissociated to deal with palliative care and on the other aid to die. “Going to commit suicide in Switzerland is not the dream of my end of life” and “palliative care, if there is a law, will perhaps do the case”, discount Charles Biétry. But “if in France the conditions are not met for a gentle and almost calm death, I will go to Switzerland,” he insists.
Unauthorized experimental treatment in France
For the show, the former journalist had typed his responses on a computer. If he can still move to a certain extent, it is an artificial intelligence that has reproduced his voice for this television program. Because “the words are in my head and I can’t get them out,” he explains. “The disease therefore gives me an appointment with death. Not sure I come. In any case, I will fight before, ”he warns, combative as always.
Charcot’s disease, incurable, is characterized by a progressive paralysis of the muscles, and a life expectancy not exceeding three to five years, once the diagnosis is posed. In “The last wave”, Charles Biétry recounts the announcement of the disease in August 2022, and “deaf anger”, the “feeling of injustice” which then rises. “This charcot is strong but I am at war,” he said, by entrusting taking unauthorized treatment in France.
And the latter to conclude his intervention with eyes full of tears. “I’m not afraid of death, so I’m not afraid of the last wave. I had known for a while that I was not eternal. On the other hand, I’m afraid of being afraid, he swears. But my waves will not do that to me. […] We all know that the end is inevitable and that sorrow will invade those who remain. We have time to cry. In the meantime, let’s live every moment. »»
