suffering from Charcot's disease, journalist Charles Biétry hopes for “a start from our leaders”

The 81-year-old man was indignant at the delay in examining the end-of-life law text, which was many months behind schedule.

Published on 26/01/2025 20:43

Reading time: 2min

Journalist Charles Biétry, during the funeral of Philippe Gildas in Paris, November 5, 2018. (JACQUES DEMARTHON / AFP)
Journalist Charles Biétry, during the funeral of Philippe Gildas in , November 5, 2018. (JACQUES DEMARTHON / AFP)

Suffering from Charcot's disease, journalist Charles Biétry, a sports and media figure, hopes “a start [des] rulers” French on the subject of the end of life, otherwise he will go “commit suicide in Switzerland”. “I blame the deputies and senators – not all – who did not do the job” and have “forgot the French“, he says in the show “Sept à Huit” on Sunday on TF1.

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The examination of the text of the law on the end of life was many months late. “I expect a start from our leaders, that they vote for this law unanimously”urges the 81-year-old man. This law would give “serenity in freedom”he judges. Prime Minister François Bayrou announced this week that he wanted this bill, whose examination had been interrupted by the dissolution of the National Assembly last summer, to be separated to deal with health care on one side. palliatives and on the other hand, help to die.

For the show, the former journalist had typed his answers on a computer in advance. If he can still move to a certain extent, it is an artificial intelligence which reproduced his voice for this television program.“Going to commit suicide in Switzerland is not my end-of-life dream” et “palliative care, if there is a law, will perhaps do the trick”discount Charles Biétry. But “if in the conditions are not met for a gentle and relatively calm death, I will go to Switzerland”he insists.

Charcot disease, incurable, is characterized by progressive paralysis of the muscles, and a life expectancy not exceeding three to five years, once the diagnosis is made. In The last wave, his memoirs to be published on January 29 by Flammarion, Charles Biétry recounts the announcement of the illness in August 2022, and “dull anger”the “sentiment d’injustice” which then rise.


France

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