His doctors accepted his request for deep sedation, carried out this Tuesday, January 14, 2025 at the end of the morning. Karine Brailly, a 56-year-old Toulouse woman who has suffered from Charcot's disease since 2013, will benefit from the protocol made possible by the 2016 end-of-life law, the Claeys-Leonetti law. After being hospitalized at the Purpan hospital in Toulouse (Haute-Garonne) on December 18, due to a lack of caregivers to keep her at home, this mother of a 14-year-old boy began a hunger strike. on December 30 to raise awareness of the difficulty of living with dignity when affected by this neurodegenerative disease.
On Monday, Karine Brailly's brother, sister and mother came from the north of France to Toulouse to support her in this process. “Her family comes to support her and spend these last hours with her but her fight continues for the other patients,” assures Daphné Villalon, Karine Brailly’s carer. “The more noise we make around his situation, the more we will be heard about the living conditions and daily lives of these patients in France. It's not an easy decision but she tells herself that it will deliver her. »
The media coverage of this painter's fight is supported by the Handi-Social association, which advocates for political reflection taking into account the social realities and daily lives of disabled people. “Today, we strongly denounce a situation which illustrates the serious failures of the system of care for disabled people in France,” underlines Handi-Social. “Faced with this unbearable situation, Karine recently made the decision to request deep sedation, accepted by her doctors, who at the same time refused her dignified living conditions. This choice, loaded with meaning, is an act of resistance against a system that denies him the right to live with dignity. As an association committed to self-determination, we fully respect Karine's decision, while denouncing a system that pushes her to consider death as the only way out. »
The association plans to demonstrate this Tuesday at 2 p.m. in front of the intensive care building at Purpan hospital.
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