Since it is deprived of speech, TF1 called on artificial intelligence to allow Charles Biétry to express themselves aloud. The one who was also president of PSG for a few months, received questions from journalist Audrey Crespo-Mara before meeting her, in order to be able to write her answers on a computer keyboard. Then, the AI was used to reconstruct his voice and read what he had to say before Audrey Crespo-Mara, which he received a few days later at his home in Brittany.
“Charcot’s disease is my life. It’s horror and a gift at the same time”
“This charcot is strong”
Charles Biétry described his situation as being “a torture” : “The words are in my head and I cannot get them out, so we curl up and we risk having no contact with the outside“However, the football specialist keeps a positive morale because he is alive and does not want to waste the time he has in front of him.”I have a few weeks or months left to live. Why do you want me to spoil them and spoil the life of my loved ones? I want to take advantage of it and do everything in my power to help research and other patients“He said.
With emotion, he described the unshakable support of his wife, his children and grandchildren. “”I am at war with the disease […] I know I’m going to lose one day, but for those around me, I have to fight“said Charles Biétry, before adding smiling and mimicking a fight:”And the Bretons are a people who never abandon “.” This charcot is strong, attack on all sides. And he kills. The disease gives me an appointment with death. Not sure I come. In any case, I will fight before “continued the journalist.
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He also deplored the fact that the French bill for help has not succeeded, following the dissolution of the assembly by Emmanuel Macron in June 2024. Now, Charles Bietry is waiting for the deputies to vote for this law unanimously, “That I can wait for death quietly without being a ball for mine […] It’s already hard to die, but then, to die, it’s double pain“. He also planned to go to Switzerland, where assisted suicide is legal, but he hopes to avoid this situation. “Going to commit suicide in Switzerland is not the dream of my end of life. Unknown doctors, swallowing the last cachet myself and knowing that my wife and two children will return to France with the funeral urn in the Chest… The more I think about it, the less I want. […] If in France the conditions are not met for a gentle and roughly calm death, I will go. All papers are signed, the family circle agrees“, said the journalist, who says he will fight whatever happens to leave serenely.
