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I am part of the entourage of a person with endometriosis • Association EndoFrance

We can’t do much and we feel helpless once again when there is suffering that we can’t imagine. Support means first of all believing the other in their pain and showing them:

  • Bring him a hot water bottle when you notice that things are less well
  • Offer him painkillers
  • Listen and offer material help (cooking, shopping, cleaning, etc.)
  • Accompany you to medical appointments, when possible, or ask for news following appointments.

This may not seem like much, but it will show that you are attentive, attentive and interested in this disease and that you want to be present as much as possible. Because their pain has often been trivialized, people with endometriosis tend to no longer say that they suffer a lot and minimize their feelings.

Expressing what you feel, putting your feeling of helplessness into words so that the other person doesn’t think “he or she doesn’t care at all” is essential. Sometimes withdrawal is the only way for the partner to protect themselves from suffering. Saying this will reassure the person affected and avoid an escalation of stress, unease, fear of being abandoned. Expressing your fear is not showing yourself to be weak, on the contrary, because living with endometriosis is like inviting a 3e invisible person in his life.

Health

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