The Fibromyalgia association, Agir Ensemble (FAE) celebrated its 10th anniversary, Monday December 9, 2024, in the Jacques-Chirac space where forty-five members gathered to celebrate the event, in the presence of Jean-Jacques Martineau, delegate to associations. “At the start of the adventure, there were around ten of us. Today, the association has 106 members »indicates Laurence Lens, president and co-founder of the association, who recalls that fibromyalgia is a very disabling disease, poorly known and poorly recognized. It is a disruption of the central nervous system which results in chronic muscular, joint and neurological pain, chronic fatigue and sleep disorders.
Operation thanks to donations
The discussion groups, organized monthly, meet a real need because the illness, which is debilitating, can be socially isolating. It is therefore essential to act together. “We support members with information, assistance with administrative procedures related to their disability, but also with access to the essential Adapted Physical Activity (Apa). We have set up two classes – aquagym and gentle gym – which are reserved for them at the Océades de Saint-Cyr”explain Isabelle Rol and Delphine Daubord, secretaries.
The treasurers, Françoise Basset and Isabelle Jacquet, specify that the association operates thanks to donations and very exceptionally calls on subsidies (two requests in ten years). The good historical management of FAE has enabled the creation of a small library of works related to pathology, financial assistance for the practice of Apa and the printing of information notices distributed in hospitals and practices medical.
Information and contact: www.fibro-ensemble.jimdo.com
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