the anger of this Breton teacher

School director in Rennes (Ille-et-Vilaine), Sonia Rabaté has suffered for several years from a rare form of Charcot disease. For eighteen months, she has benefited from treatment which has not only stopped her muscular degeneration but also improved her condition. Except that the High Health Authority has just decided to refuse reimbursement. For the fifty-year-old, the decision signals her death warrant in the medium term.

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April 2019 in Rennes (Ille-et-Vilaine). Sonia Rabaté, now 50 years old, does her weekly sports session at the Tour d'Auvergne club. “Suddenly, I realized that I could no longer stretch my body. » A routine exercise for this sportswoman. She decides to talk to her doctor who refers her to a neurologist. “I was diagnosed with chronic inflammatory demyelinating polyneuropathy. » A pathology that causes muscle weakness.

Doctors prescribed immunoglobulin injections to restore muscle tone. “But the treatment did not give the expected results. » The mother of three children will then go through a period of diagnostic wandering which will end after a day hospitalization at the Pitié Salpêtrière hospital…