On Wednesday, everything goes very quickly. You have to juggle between music therapy, physiotherapy session, lunch… “It’s going quite well, I’m within five minutes, you see, of 2-3 small organizations…”says Delphine Ganne. Since his birth, his son Martin has suffered from cerebral palsy: it was an in utero stroke which led to right-sided hemiplegia and language disorders.
An upheaval for the family’s life. “Overnight, we will say that I became his taxi, his secretary, his educator… And above all there was a rehabilitation schedule that had to be put in place.”
Seven rehabilitation appointments per week, a must
A busy schedule, in addition to school: no less than seven rehabilitation appointments per week. If Delphine Ganne gave up her professional career, it was to allow her son to acquire maximum autonomy. “It is obvious that rehabilitation is essential to his recovery, it is what allowed him to learn to walk despite his hemiplegia, which allowed him to learn to speak, which allowed him to perform many acts of speech. daily life too.”
Even if she receives some assistance, Delphine would like her status as a caregiver to be better recognized. “My son and I do not fit into the boxes of this status of family caregiver PCH. So I am not entitled to it, I cannot claim it. And so, today, what what should I be able to contribute to the pension, because for seven years, I have no longer contributed to the pension… I would like to have some appreciation for what I do on a daily basis.”
A third of caregivers are forced to quit their job to care for their loved ones.
