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“I don’t want people to feel sorry”: Ève Gilles (Miss 2024) talks about the very rare disease from which she suffers

An important announcement for Miss 2024. This weekend, Ève Gilles wanted to reveal in a video for Konbini and in an interview for the daily “Le Parisien” that she has suffered since childhood from a very rare disease, dyskinesia. paroxysmal.

“We started to ask ourselves questions”

During this interview, journalist Yves Jaeglé asked the 21-year-old young woman, originally from Quaëdypre in the North: “When did your illness start?”. The latter then replied: “At 8 years old, I started to feel like I had no control over some of my movements. The first time was at basketball practice, during a sprint. I told my parents that I thought I had a tic because I couldn't control the movement… We started to ask questions”.

The one who will return her crown next December during the election of Miss France 2025, hosted by Jean-Pierre Foucault, added: “As I grew up, I had more and more seizures, from the middle of fifth grade until I reached sixth grade. It has become constant, something to integrate and manage in my daily life. Sitting down, I was told to get up, and if I didn't get ready five minutes before I had a seizure. I could no longer make a spontaneous gesture without a seizure”. Then, she did not fail to explain what she calls a crisis: “These uncontrollable movements of the legs which give way, of the arms, of the eyes. In my family, we called it a 'bug', my 'bugs’”.

During the same interview, our colleague sought to find out if this fragility had made Ève Gilles hesitate when preparing for the Miss competitions last year. She clarified: “It was at a time in my life when I no longer had seizures at all and I only spoke about it for informational purposes during the local competition, without publicizing it. I wanted it to be my secret garden. This illness had defined me for years, I did everything based on it, and I wanted to live just for myself… But three or four days before Miss France, it came back during a rehearsal. It's my fault, I didn't take my medicine when I felt it coming. It can be linked to stress, excitement, fatigue, but also to nothing at all”.

Also read: Ève Gilles in “Fort Boyard” on France 2: She reveals the valuable advice Natasha St-Pier gave her

Finally, Miss France 2024 affirmed that the announcement she wanted to make today to “Konbini” and “Parisien” scares her a little. “The way others look at me at that moment scares me more than the illness. Not mockery, but I don't want people to feel pity, to adapt their behavior. I have always had kindness around me. The fear of talking about these invisible illnesses is the fear of causing fear. But it makes me feel good to talk about it”, she confided.

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