Demonstration in Bern for better management of chronic fatigue syndrome – rts.ch

Demonstration in Bern for better management of chronic fatigue syndrome – rts.ch
Demonstration in Bern for better management of chronic fatigue syndrome – rts.ch

Some 400 people demonstrated on Saturday on the Federal Square in Bern for better care for patients suffering from myalgic encephalomyelitis, or chronic fatigue syndrome, which sometimes results from long Covid.

Participants expressed “deep distress”. They provided 300 pairs of shoes for the 300 patients who would have liked to join them but could not, because they were too weak, announced the organization bringing together the patients concerned.

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is also known as systemic exercise intolerance disease. This disease is so debilitating that those affected cannot carry out their daily tasks. Most of the patients are women between 30 and 50 years old, for mysterious reasons.

Not enough specialist doctors

There are only a few doctors in Switzerland capable of treating them, specifies the organization, which estimates the number of patients concerned at 60,000.

Chantal Britt, president of the Long Covid Suisse association, is one of the organizers of the event. On Saturday’s Forum show, she asked that Switzerland set up “competence centers” and promote research into ME/CFS. “We need to start understanding this kind of disease so we can diagnose, treat people and make evidence-based decisions,” she says.

The President of the National Council Eric Nussbaumer (PS/BL), present at the demonstration, also deplored the lack of qualified personnel in Switzerland.

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