It is a job based above all on experience. Former patient, Lydie won a diploma at the university of patients in the Sorbonne. She practices in Caen and has recently been involved in the cancer service at the Avranches hospital.
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When she arrives in the service, Lydie Cochi does not wear the blouse. Patient expert in cancerology, she also does not need to put herself in the place of her patients: she has really been in their place.
She has been working in Avranches every Tuesday since the beginning of the year, to accompany both people with cancer and nursing staff.
“I am a support, and above all I am between the two“She explains.”Since I was in the medical community: I was a medical secretary, I was a helpful, I had two cancers … So all that, with all my caps, I manage to chat with them, and especially to move them forward in their care path “.
The announcement of the disease is terrible. It is a tsunami. It is a concrete wall, and we have no more than time to have the announcement, since afterwards, there are all the care. So I chat with patients too so that we can move forward, because they will be forced to move forward quickly.
Lydie checked, patient expert in cancerology
This background race is strewn with questions and fatigue. Arlette, a patient, learned to manage, encouraged by Lydie. She got into health sport. “Physically, at the medical level, it is true that we are also very well supervised. But Lydie brings more … all the problems that we can encounter alongside, in everyday life”, explains the patient.
The role of an expert patient then becomes an essential link in the caregiver-patient relationship. This role, Lydie learned it, during university training: “Personally, I think we have to be trained. It’s not possible otherwise. And you have to continue to train, because cancerology is advancing at an impressive speed. So always train to best give information to patients and caregivers too. I am also a speaker at the Faculty of Medicine, which means that I can also chat with future doctors, future pharmacists. “
What Lydie likes to repeat is that “None of us know what we all know together. “
“The patient’s place is increasingly important“specifies Isabelle Ridet, director of nursing at the hospital deprived of the Bay, in Avranches. “We are interested in the patient’s speech, his experience. Everything that the patient feels, everything he expresses on his career, on his stay, uses us to improve, and see what we can put in place. And the role of the partner patient, he is also there for that.”
This new role, an expert patient, also makes it possible to clarify and complete the patient’s word to the professional, or also to resume, reformulate what the professional, the nurse, the doctor explains to the patient, and help the patient better understand his care.
It’s a real revolution, a real revolution!
Isabelle Ridet, director of nursing at the Bay Private Hospital
“It’s a real revolution. It’s a real revolution”, repeats the director of nursing. “”And I would even say that for me, tomorrow, the partner patient will be one of our support teams. That is to say with all the professionals who can intervene to support the patient in a care path, in the same way as the psychologist, the dietician, the socio-esthetician … All the health professionals, employees with us or others, who intervene in the patient’s journey. “
Lydie checked today divides her time between several establishments. She hopes that her testimony will arouse vocations: to date, only four people exercise as patient partners in Normandy.
The French -speaking model of the “Partner Partner of Care” was created by the University of Montreal in the 2000s. In Paris, the University of Patients was created in 2009.
The idea was in a way to rebalance the knowledge and power of the medical profession. It tends to recognize the complementarity of the different types of knowledge. To the scientific and technical knowledge of professionals are added that of patient experience.
This idea of the patient who can help another patient was born with groups of support of anonymous alcolics in the United States in the 1930s.
During the AIDS years, in 1980, patient associations played an important role in public information and even medical friends. But the helping patient is not specifically trained for this.
It was in the 1990s that Kate Lorig, suffering from arthritis, developed in the United States, in Stanford the Chronic Disease Self-Management program (CDSMP). This program is a pioneer in the involvement of trained patients to help other patients manage their chronic diseases.
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